Well, the cat is out of the bag (thanks, Grant...) and so just to get everyone on the same page, make sure no one feels left out, and try to update as many people at one time, here is what has been going on with me. And my head.
When I was playing Michelangelo and painting on the ceiling, I started getting vertigo. I thought it was related to the painting, and it probably was. But I have gotten it several other times since then. Then, starting about 2 months ago...maybe? I started getting headaches. Bad headaches. Always starting in about the same spot, and always felt the same. Added to this is the fact that I have horrendous neck spasms I've been treated for on and off for probably 3 or 4 years. I've been to the ER before they get so bad. Then, around the end of November, first part of December, I was glanced at my reflection as I passed a mirror in our house. I had to stop and look again to make sure I wasn't crazy. My left pupil was almost the size as my entire iris, and my right pupil was tiny. I looked like a freak. Since then, my pupils have continued being asymmetrical. I had a doctor's appt Christmas Eve that was already scheduled, so I just decided to wait. My headaches got worse.
When I went to the doctor on Christmas Eve, the doctor noticed my eyes immediately. He ordered a CT scan, and wanted me to consult with an ophthalmologist as well. I had the CT scan done and saw the opthalmologist New Year's Eve. The opthal. also, of course, saw the problem with my pupils. However, my vision is perfect, and the CT scan was clear. He said the problem with my eyes had nothing to do with my vision, and that it was a neurological problem. He wanted me to have an MRI because it shows the brain better, and have a neurologist see me. I was supposed to go back Jan. 20 to see if my eyes were the same and then he was going to order those 2 things.
As of yesterday, my eyes were still the same, and the headaches were getting worse. I went back to my original doctor because I didn't feel the need to go back to the specialist since my vision was fine (and he costs a fortune!) and these were the decisions made yesterday:
Dr. Hollister does not want to do the MRI just yet. He wants to try a couple of things. One, he has decided that the headaches are definitely not tension headaches or muscle related, because the muscle relaxers are not phasing them. (I keep a headache every single day, all day. It dulls occasionally but never goes away. Sometimes it shoots stabbing pains through my head.) So he wants to try me for 5 weeks on Topamax. He also is doing bloodwork to see if my Lupus is involved in anyway. If any of the levels in my bloodwork are off, he is going to order more tests focused around what the lupus is doing to me. In 5 weeks, Feb 20, I will go back to re-evaluate. That is contingent upon there being no changes in my condition, and the bloodwork they are waiting on.
So now you all know as much as I do. I'm frustrated, but trying to be patient. My head hurts. Bad. And my vision is blurred a lot, and that's frustrating for me too. But I'm going to see what happens with the path he wants to take right now. I'll let you all know, and keep you posted if anything changes.
I wasn't trying to keep this from anyone, I just don't like dealing with stuff like this sometimes, and I didn't want to get anyone all worried about me. I also don't like anyone to think I'm one of those people who has to let everyone know when they have the slightest thing wrong with them.... I don't mean that bad, I'm just saying. I can actually be kind of private about some things. I think it is a defense mechanism.... my fragile little psyche can't always deal with things and I just close up and pull inside of myself to deal with some things. I know that's hard to understand...but it's me. I internalize, and that's good and bad and I'm sorry if I hurt anyone's feelings.
But anyway, this post and the last are just pathetically not funny or fun or sassy..... it's 20 degrees in Mississippi so maybe that's it! I will try to think of something good and do another post really soon! :)
and the countdown is on...... Steven leaves in 18 days..... sigh.
So far, so good!
13 years ago



2 comments:
I'm sorry you're feeling so yucky. Since wonderful menopause, I have had migraines and I wouldn't wish 'em on my worst enemy. Well, maybe WORST! jk Hope you start feeling better soon.
Barbara
I'm so sorry to hear about all this but glad to hear you have a plan of action that you feel comfortable with. I'll be praying!
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